This week, we found the waiting to be difficult. The days have been full of normal things; work, school for the kids, pickups and dropoffs at extra-curriculars, etc. And they haven’t been bad at all. But Lori and I have both found, in the quiet moments, a tendency to worry.
It actually hadn’t occurred to me to worry about my test results before this last week. I’ve probably written before about my over-optimistic tendencies — the belief that things like this will just work out. The treatments worked, I tell myself. Why wouldn’t they have? And it wasn’t until this past week, spurred on by a minor but persistent sort of ache in my core muscles, that I finally had the thought:
well, what if the treatments didn’t work?
Or they did, but not enough, and things have spread. Or any number of other worrisome scenarios. It wasn’t a shattering thought, but it is difficult for me to acknowledge and face some of the bad outcomes that might be in my future.
The tummyache went away, and I’m still optimistic overall. Mostly we’re kind of at a place of wanting to get on with it. Which I will, with a CT scan tomorrow morning, followed by an MRI at the end of the week.
It’s probably gonna be fine. I’m sure it will. Well, mostly.
Changing the subject; sometimes, since my diagnosis, people have asked if I’ve ‘lost weight’. It’s meant as a compliment but I don’t know what folks are seeing — I mean, you looked at the comparison photos a couple of posts ago, and the scales at the hospitals always come out pretty much the same. I appreciate that folks are trying to be nice! But actually, as I would reply to people, I’m not supposed to be losing weight during this time. Visibly losing weight would actually be concerning; the doctors and my dietitian agreed at the outset of this journey that losing weight should not be a goal as my body will need its reserves of energy to help in getting through treatments.
I will never get upset to anyone’s face about this comment, but let’s be honest; if I’d lost my hair and looked ‘sicker’ it would not be something folks would offer as a compliment. And I’ll be honest again and say I’ve definitely stepped in this one myself; a few years ago I ran into an acquaintance after not seeing them for some time, and since they were noticeably thinner I asked, as a compliment, “have you lost weight?”
“Yes, stomach cancer will do that to you,” came the reply. And I felt…not very good. They weren’t upset with me, but their tone was so resigned that I got the sense this was something that came up a lot for them. And it wasn’t anything to celebrate.
So! Let’s agree not to comment on the body sizes of cancer patients! Actually, let’s go one step further and agree not to comment on the body sizes of other people, like, at all. We don’t really know what journey somebody’s on, and it just doesn’t seem like a helpful thing to focus on!